This Ode was written on May 9th 2011 by Esther Vasa under the complete inspiration of the Holy Spirit. This was submitted to Dr. Brian R. Apatoff at 401 East 55th Street, New York on May 12th 2011 when she was in his office for severe backache followed by further tests on kidneys and bladder at NY Presbyterian Hospital. He was informed in an earlier discussion that she would publish it on her website. No part of this Ode can be copied, printed, used, reused or distributed without prior permission of Esther Vasa. Its a 134-line ode following a 1-24-12-24-12-24-12-24-1 style specific to the writer for this ode composed using iPhone notes.

Thanks to my TRUE LOVE, Kiran Yadiki for capturing this picture of me with THE KOHINOOR, Dr. Brian R. Apatoff
How come THE KOHINOOR has time in the world for this SILLY ROLLING STONE simply desiring to roll along with NO PULL OF PAIN?
Years of questioning, “Why the constant pain?”
At the ER for chest pain, shoulder stab, sudden abdominal cramps, stabbing back, legs giving out as I jog, bowel-bladder issues wondering if it was all in my mind
MRIs for Brachial Plexus, Rotator Cuff, some saying Tendinitis, some others Bursitis, some mere Scoliosis, then Spondylitis and the buzz words go whirling on my mind
Chop a carrot and the Pinky winds up and I stretch hard to let it go and then the other finger goes limpy and lumpy by the morning
Hope to rise up as a sweet cake but end up lugging like a suitcase
People saying, “Computer Professionals catch Carpal Tunnel Syndrome” and I say “Can’t be so with me as its not just one spot that hurts!”
Come home determined to figure out why my body stops working all so soon
At 28, may be I did too much but then I delivered only a single child and that too a Caesar not through a labor
Then a thought triggered, “Go-Organic all Veggie Diet” and may be that’ll solve, fiber-up, run like a pro, stretch like a cat, guzzle water, tried many tricks and was never tired of looking around for what could help me
Pain still sings it’s own sweet melody in the body
Perhaps too much stress to make ends meet but then I see myself a merry-go-round types
Wake up at 4am, say a quick prayer, finish the chores then try finishing work by 4pm only to reach home by 7pm – STRESS I declare!
Puzzled, bewildered and confused if some one can relate to me but then I say to self, “All is well with my soul!”
Try lift my voice just not sure when the chest will stop and so take it easy, no choir!
Wear heels, the silly rolling stone will lie flat for a fortnight and so, only flats she decides, throw all the footwear out
Plan ahead, not too sure if it’ll work out for so weak I am that I even hate to say am weak and keep believing I am strong in Jesus
Then arrives 2009 and I lay hold on all the promises from the Bible for therein is my only comfort
The months go running and I go fading when finally September sure brought it’s agony
Nimbly legs go numby, fingers singe and shock, ankles dwindle, knees drop and still no help
The neuro on the block says, “It’ll be fine” and I so know am not and I question if he knows his neurology
From September to December I only dream of pain full swing from dawn to dusk and dusk to dawn
By then I, a-good-for-nothing SILLY ROLLING STONE guess if it is MS but shoo away the thought for it cheered me not
Hated the two letters “M” and “S” so much that I didn’t want anyone to call me “Ms” Vasa
Had a fear if the neuro on the block would utter those letters eventually but then he writes an MRI a month, long wait, I hate and say, “God’s will be done!”
PCP recommends one Dr. Apatoff but then I wasn’t so sure if he’d do something
Anyway, fix an appointment, painful as it is, let us see if he has any clue what my electric body has
Sure, the first visit made me comfortable and the talk nearly confirmed I had MS but then “Why no fear?” I ponder on my way back home
Because God hasn’t given us a Spirit of fear but of power, love and a sound mind
I decide to get that lumbar puncture before the New Year 2010 begins
What difference does it make for I take my resolutions in bed with the savory Word which is my Sword!
I indeed desperately sought a wee bit relief from that affliction but why say it as the good Lord knows it oh, so well the pain and suffering on that Holy Cross
The kind and gentle Dr. Apatoff worked so hard to tap the spine with almost no pain
People said, “It’d hurt” or “Your head hurts” and I said “Nothing of that sort!”
The results arrive and I still don’t derive why I don’t fret
At least I know I have my options that kind and gentle Dr. Apatoff presented and some comfort was more than enough
I chose Copaxone, therapy began and I got some relief from that unwanted grief
Diligently started writing an MS journal to track each day, what I take, symptoms I face, changes I make, supplements I used or skipped, dosage of medicines and what not?
Prayerfully created a Facebook group, “Multiple Sclerosis and Diet” soon after diagnosis based on your words of being careful with what I intake to understand this worthless body in hopes of helping some MS body
Encouraged to see a good 1000+ people, some asking the same questions I had asked, some looking for tips or a recipe and some simply looking for hope
Started blogging on tips and recipes to fight MS just so there could be some help to somebody
Precious friend from South Africa, Elna joins me in my effort and we team up to help some body, pray for the needy but then that is simply not sufficient and it still bothers me
Through the treatment, somehow I still struggle thinking there must be other modes and many said these therapies are toxic and I guess I didn’t need those toxins
Suddenly an accident and a relapse followed by a whole galore of activity in the CNS
I trust the kind and gentle Dr.Apatoff but still I looked for a silly quick fix not knowing I was playing with fire
One deadly look at that report from someone who supposedly tried helping me and Dr. Apatoff’s fiery face made me want to hide
For why would I not trust this “Bridge over troubled water”? just as Simon and Garfunkel sang
I knew I was at fault and when you put that phone in my hand to place a call for the person’s license, I froze in fear for the first time and nearly disappeared in thin air
But you glued me to that IV all rough and rude making me wonder where the kind and gentle Dr. Apatoff go
A few minutes alone in the room felt like heavens and when you arrived you sounded calmer
Slowly said, “I will call from home!” and you understood immediately when I said, “A simple desire to be healed!”
I got my spanking for I needed it and as discussed got the refund in no time thus making it all clear to me that kind and gentle Dr. Apatoff was simply right!
Learn and move on, I decided but the pain never vanished
My company Arden’s Red Door Spas are a treat to anybody but for my MS body its a feat and so I say, “Can’t do it!” until MS is marked defeat
Lake George, Finger Lakes may be to some refreshing but to me with MS body no lake but bake with achy wakes
“Work from home” has become the norm for this silly rolling stone as any ride chides her body
Not sure if I can handle going to Times Square Church or Brooklyn Tabernacle for those seem too far that it could become a drag
Walk for 2 or 3 miles, stretch, bike and weights were slightly manageable and that was near BLISS!
Thankful that kind and gentle Dr. Apatoff could help my MS body do the things that it can at least do
Wanted to get more help but put off the next visit for as I knew you would send me for MRIs
Those MRIs don’t sound good or look cozy and so stayed away from seeking help for good three months
Took appointment three times and canceled finding one silly reason or the other
New symptoms emerge from nowhere, old ones recur but then it’s all a cycle and when will the rut of the wheels stop?
Finally, got in on the April 19th explained all my umpteen symptoms to the doc who listened carefully and asked if the copy was his
I drafted my own silly analysis and so quite not sure what you’d think and so said, “No, its mine!”
The three MRIs went in a flash and it was not so bad with the guys playing cheerleaders at the Weill Cornell and yes you were right that was better!
Happy for a week as I got some help but suddenly this so-called myelin desires to break and forced a sudden brake to my body making me writhe and groan with no sleep from April 26th to April 30th of this blessed year 2011
Sometimes the Gentle Shepherd cradled me for half-hour sleep and what more can I ask I had a tryst with my Savior
He sure taught me sacred lessons from my bed of affliction and I moved from grace to grace within just those few days
I waited for the pain to fade away, called on Wednesday and figured let me take the pain and see for a few more days
But on Sunday after hours of silly research I called to ask if mine was SPMS
Your first question as to why I did not show up on Thursday or Friday left me amazed because you remembered this SILLY ROLLING STONE did not show up
Relieved when you confirmed it’s not SPMS by picking my call even on a Sunday
Then, the brain freezes and simply blips, ponto punches and pushes, unnecessary brain signals, wheezing crickets in ears, through and through all through the night
Leaving me dazed and hazed, couldn’t swallow or drink for a few hours and I wasn’t sure if I was losing it all aimlessly, ruthlessly and hopelessly
At 6:45AM on Monday I call and “I’ll treat you as my first patient” was your response and I sensed you were serious with that stem called the brainstem
And that was still not a relief as I wasn’t sure how I can get there to get some help
Fought with Jesus my ever-present help asking where my help ever was?
I said to Jesus, “I will not move until you put a new song in my mouth!”
Lo and behold, five minutes later, I sang the most beautiful song of my life that I cannot repeat
Then I rose up and said, “I have life…” and yes, in abundance that too in Jesus and showered, got dressed in lavender, my favorite color, stepped out, all shaky and trembly
Although I recognized a rare gem in Dr. Apatoff long back, I did not know until I got there how true that was!
Sometimes I believe am adamant to the point where I choose pain over a simple drug for fear of silly addiction
Got a grieving look and a scold from you for resisting to fill a prescription
The silly rolling stone although stubborn understands the benefits of all recommendations eventually… Sigh!
Perhaps Dr.Apatoff has a solution for every MS symptom because of God’s wisdom but then I am not too sure if I’d bother him with my silly MS problems, questions and curious observations
I notice something silly with tapering prednisone and you said it wasn’t silly and changed the dosage
Well, the kind and gentle Dr. Apatoff applied the BEST BALM to this silly soul when he said, “I am not going to allow that thought of wheelchair for you. We will fight it together!”
Hope sprung in this hopeless silly rolling stone’s heart just knowing that there is someone who totally understands the pain and fully empathizes so gracefully
When new medicines helped, daily updates and changes from a super-whiz Dr. Apatoff made it more comfortable I regret why I hadn’t seen the true gem even without this episode
This episode was a MUST for me to feel thoroughly blessed by God’s generous provision
You cared for simple things like when giving the IV you asked “right or left” and checked the left hand and I said it hurt adding, “It doesn’t matter just give it, am used to pain.”
You go, “I don’t want to add further tell how the pain goes”. After explaining how the pain goes, I thought for a minute how I never cared for such minor aches for they are all over
And when I forgot to hold the swab longer and it bled, you said, “Didn’t I ask you to hold longer… See, I don’t want that beautiful blouse you are wearing to get soiled”
In my heart I said, “It’s probably $10 but it’s special as it was my sister-in-law, Jessica’s gift to me”
I tried adorning myself or carrying something from my sister or brother or parents just to feel secure in my hour of pain and agony
I could go on and on as to how kind and gentle you are
Whoosh! My mind raced and my heart bled and still bleeds for those who can’t be comforted like I am
“I know I am in the best hands and I’ve had enough attention, now how about those that don’t even have someone to care?” I asked you
Thoughts of Prakash Punjabi in Hong Kong, whom I now dearly think and pray for as my son, who was diagnosed with MS at 10, currently 21 declared to be bed bound
Can somebody hear? This CANNOT be true. It sure is a LIE from the Satan! JESUS, help wipe out MS!
Why can’t he get some medical intervention to help him be agile like every other 21-year-older?
If it were my son, Anoop I would have it on me and I called him son and decide to ask you, “I will bring Prakash from Hong Kong some how but will you treat him, please?”
Prakash says his only friend is God and that pierced my heart and I figured I would be his friend for life!
I’ve experienced the pleasure of your care and comfort and I know I will be alright
I have a tirelessly caring husband, loving son, prayerful parents, concerned siblings, compassionate in-laws, comforting friends far and near, gracious colleagues and above all a God that never leaves nor forsakes
But, will you not consider helping Prakash?
Having felt a bit of sting in my body, the hour has come when I should watch out for those that suffer much harder than I
Heart-wrenching stories from the Multiple Sclerosis and Diet group members, MS fighters coping without insurance, who can’t go to a doc to seek help cuts me asunder
Is there something I could do to help my co-fighters?
I will renounce all my tasks, save the inevitable, to dedicate myself to help someone fight MS and eventually help find THE solution
“SOLVE to DISSOLVE the rising MS malady”, is and will be my banner until that glad day when we are free of MS!
For I felt its evil kiss on my face and detest it on others
I long to scoff at MS for GOOD!
Can’t we clone multiple hands and hearts of kind and gentle, Dr. Apatoff?
Your every word is a pearl of wisdom uttered my way but I missed a few I guess but will not going forward
Right from managing weight you gave me tips and I follow; they work like charm!
Your action, a merit to the receiver that can never be reciprocated
I see the dire need to expand your selfless service in this selfish world
Me, the under privileged, am privileged now and see the need to let others experience
On Sunday, a friend uttered, “God is preparing hands for you, Esther, rest!” and on Monday, I sure felt those hands
To me your care is life-changing and why not change more lives so they can lead a carefree life
You said, “I will wipe this out of your body so you will not remember this episode…”
So grateful for such a determination for me!
I propose, “Let’s wipe out MS out of the WORLD and give it a good riddance!”
Let us operate under the shadow of the Almighty for I believe YOU are the ONE to solve the MYSTERY of MS to make MS a HISTORY!
MS is a LIE; it should DIE!!!
What’s that single solution heaped with blessings to the millions like this SILLY ROLLING STONE that simply wishes to roll its normal course?
That sure will make us all, “The Redeemed of the Lord!”
You sure are God’s instrument for me and my co-fighters!
You asked what I’d do with the picture and yes, here with the ode goes your picture
Thus, this silly rolling stone awaits a CURE for MS…
“You are not just a rare gem, you are THE KOHINOOR!” says the SILLY ROLLING STONE.
Ah! Alas, will you not try a little more hard as we pray for divine wisdom and let all the silly rolling stones like ME roll freely while you shine forever?
[With special thanks to Pastor John and Suneeta who created this website and made this blogpost possible. Their constant prayers and encouragement are ever appreciated!]